The GlomCon is creating 5 focus areas. The first is a clinical exchange platform to bring together clinicians and pathologists from different locations in form of online case conferences. The remaining four are elements of a patient registry and have a scientific mission.
Members who have local institutional review board approval can enroll patients in any or all of the registry elements. Patients can choose to provide their medical records, including laboratory data, doctor’s notes, biopsy results and treatment history. Patients may also choose to donate a small amount of blood and urine. We give everyone with a known or suspected glomerular disease the opportunity to donate their DNA for research purpose. A contact registry will collect information from patients who are interested in participating in current or future clinical trials.