Projects

The GlomCon is creating 5 focus areas. The first is a clinical exchange platform to bring together clinicians and pathologists from different locations in form of online case conferences. The remaining four are elements of a patient registry and have a scientific mission.

Members who have local institutional review board approval can enroll patients in any or all of the registry elements. Patients can choose to provide their medical records, including laboratory data, doctor’s notes, biopsy results and treatment history. Patients may also choose to donate a small amount of blood and urine. We give everyone with a known or suspected glomerular disease the opportunity to donate their DNA for research purpose. A contact registry will collect information from patients who are interested in participating in current or future clinical trials.

Web Based Clinical Case Discussions

We all know how challenging it can be to meet the daily demands of clinical work and at the same time participate in clinical conferences. Through the GlomCon, members will have online access to live clinical case conferences. In these conferences nephrologists from medical centers, training programs, and communities can connect with each other and with pathologists to discuss challenging cases. Often, the opinion of peers goes a long way when it comes to managing rare or complex glomerular disorders. CME credits will be provided to participating members.

Epidemiology & Observational Studies

A clinical data registry will serve as the backbone for enrollment and longitudinal follow up of patients with glomerular kidney disease. Consortium members can study disease incidence, prevalence and observational outcome studies across a cohort drawn from a network of nephrologists.

Discovery & Validation of Biomarkers